Parkinson’s home care

Given that Parkinson’s is the fastest-growing neurological condition in the world, most of us will, at some point in our lives, either know someone living with it or be diagnosed ourselves. At ENA Care Group, we believe that living well with Parkinson’s is possible with the right support.

Getting the most out of every day is a key aspiration for many people living with Parkinson’s, and with support in adhering to a treatment plan and help to do and achieve the things they want to, the person’s life doesn’t need to be defined by their condition. Alongside this, we believe passionately in supporting the whole family so that Parkinson’s can be faced together.
Live-in Care

What is Parkinson’s disease?

Parkinson’s is a progressive neurological condition and the symptoms usually develop gradually. Symptoms can be mild at first, but Parkinson’s home care is usually needed as the symptoms progress and more support is required.

Parkinson’s is caused when cells from a part of the brain called the substantia nigra no longer work properly and die over time. As these cells die, the chemical they would have produced, dopamine, decreases in the body. Dopamine is used by the brain to send messages to control movements, and as the levels of dopamine reduce, the symptoms of Parkinson’s gradually appear.

As a result of this, the three main symptoms are physical: slowness of movement (bradykinesia), muscle stiffness (rigidity) and Parkinson’s tremor (shaking) when relaxed and resting. Other physical symptoms can include: loss of smell, nerve pain, swallowing difficulties (dysphagia), urinary incontinence and balance problems, among others. But it’s not just a physical disease: those with Parkinson’s can also experience cognitive and psychiatric symptoms such as problems with memory and organisation, dementia, depression and anxiety.

When should someone with Parkinson’s seek specialist care?

A person with Parkinson’s needs specialist care when they start to struggle to manage everyday tasks safely, or when a family member or friend who has been helping them finds it to be too much of a burden. The level of professional help a person with Parkinson’s needs depends on the individual and their circumstances, because Parkinson’s progresses differently in everyone.

A person with Parkinson’s can still live at home; there are many benefits to remaining in familiar and comforting surroundings. And initially, they might just need Parkinson’s home care for things like medication management, shopping and food preparation. But as Parkinson’s advances, they will need increased levels of support, such as help with their personal care and to move around the house. Ultimately, full-time home care or a nursing home might be needed.

Parkinson’s statistics

Approximately 145,000 people in the UK are living with Parkinson’s.
Every hour two more people are diagnosed, which is the equivalent of around 18,000 people every year.
1 in 37 people alive today will be diagnosed with Parkinson’s in their lifetime.
Although most commonly associated with ageing, with most people developing Parkinson’s symptoms over the age of 50, 1 in 20 people first experience Parkinson’s symptoms when they are under 40.

Reasons to consider Parkinson’s home care

Initially, many people diagnosed with Parkinson’s manage to look after themselves with some support from family and friends. Choosing to engage with professional Parkinson’s care is a very personal decision, but may include some of these reasons $
$ The person and/or their family are struggling with treatment regimes or may be experiencing more debilitating Parkinson’s symptoms. The person and/or their family may want a long-term live-in care service, or they may prefer to try our respite care service first.
$ The person lives alone, and their mental health is declining.
$ The person is developing dementia symptoms, alongside their Parkinson’s, which is making it difficult for them and their family to cope.
$ The person’s Parkinson’s is becoming more advanced and the increasing physical symptoms require specialist support.
$ The person wants to remain in their own home, either with companion support in the earlier stages of their Parkinson’s, or more complex care in the advanced/palliative stages.
ENA Parkinson's Care

Key elements of ENA live-in Parkinson’s care

We support people with Parkinson’s from pre-diagnosis to the advanced and palliative stages, with carers specifically trained to help. Our Parkinson’s care is highly individualised, taking into account that no two people experience Parkinson’s in the same way. What does run consistently throughout our Parkinson’s care, however, is dignity and respect for the individual, and a determination to improve their quality of life.

Our care plans are formulated with the client and their family, if applicable, and are constantly reviewed to ensure we understand the person’s needs and their symptoms, from which we can adapt our care and support accordingly.

We know that people with Parkinson’s often have fluctuating symptoms, possibly being able to undertake a task one day and not the next. Therefore, our live-in carers are very adaptable, stepping back when the person can achieve something unaided, and working more closely with them when they need help.

We are also always on hand to discuss any aspect of your care costs and we can help to answer any questions you may have on funding your home care.

The benefits of ENA live-in Parkinson’s care

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Maintenance of the person’s treatment routine

Our live-in Parkinson’s carers know how important it is for medication to be taken on time and that other elements of the person’s treatment, such as exercises, are completed as per the person’s plan from their physiotherapist or other healthcare professional. Our live-in carers are also trained in the side-effects that can occur as a result of taking Parkinson’s medications, can help the client to attend regular medication reviews (and follow up appointments with the person’s specialist) to ensure their treatment plan remains relevant and up to date.
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A supportive and patient approach

Our Parkinson’s carers are experts at getting to know the person and understanding what they do and don’t find challenging. We pride ourselves on working alongside them, ensuring that they can communicate, work on tasks and do the activities and hobbies they wish to do at a pace that’s right for them, with an emphasis on minimising frustration they might feel as a result of their symptoms.
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No more worries about struggling alone

Having a live-in Parkinson’s carer means support is always available, which may be particularly important in the morning when many people with Parkinson’s struggle to start the day and complete morning routines.
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Nutrition and hydration

As a person’s Parkinson’s progresses, they may develop additional movement or swallowing problems that make eating and drinking difficult. Our live-in carers are able to provide support by adapting foods and drinks, and helping to maintain their nutrition and hydration safely and also their enjoyment of foods, drinks and mealtimes too.
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Companionship to alleviate depression and anxiety

Some of the more hidden symptoms of Parkinson’s can be extremely distressing, with the toll of depression and anxiety being particularly debilitating. The companionship of a live-in carer can help to improve a person’s wellbeing, thus alleviating some mental health concerns and also ensuring the person isn’t lonely or isolated.
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Support to minimise falls

Given the movement problems associated with Parkinson’s, many people living with the condition are at a greater risk of falling. We assess the person’s fall-risk regularly, and our live-in carers are adept at minimising risk and potential subsequent hospital admissions.
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Help to get a good night’s sleep

Our care services can include night-time support to enable the person to move in bed and be supported to use the toilet if the person is struggling with this too. Having someone to talk to can also help the person to feel more settled if they wake in the night and are struggling to get back to sleep.
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A holistic approach to multiple conditions

If a person with Parkinson’s develops memory problems or is diagnosed with dementia, they won’t need to end their live-in care service with ENA. We can support multiple conditions, and offer both complex care and end-of-life care services if needed.
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Contact us to discuss your Parkinson's care needs

We are always available to help you understand Parkinson’s care better, and to discuss the best home care and support options for you and your family. You can call us on 01707 333 700 or email